UCP went roller skating on October 10th. Kids and adults took to the floor using any combination of wheels--whether that was skates or wheelchairs. A good time was had by all.
Last June, UCP had the pleasure of giving out almost $40,000 in “Family Grants” to UCP families who use our Family Support Department’s services. We were able to assist over 40 families, paying for all sorts of equipment and therapy services, including Upsees (a mobility device that lets children with motor impairment stand and walk with the help of an adult) , adaptive strollers, intensive therapy, communication devices, and more. We also paid for a stander for Jeffrey, which you’ll get to read about below, in the words of his family.
Thank you so much for the wonderful donation to help purchase Jeffrey's Easy Stander. He loves it so much!
The stander has wonderful wheeled mobility which has enabled him to be easily moved throughout the house to participate in all kinds of activities in a standing position. His favorite is cooking! You can find him in the kitchen every evening helping with dinner.
He also enjoys using his computer a lot more because the standing table surface is large enough to accommodate his computer and mouse pad!
It's been a lot of fun for all of us.
I haven't mentioned to him that the purpose of a stander is to prevent hip surgery by keeping the hip socket formed correctly with correct and consistent weight bearing. Wonderful!!!!
We sincerely appreciate United Cerebral Palsy's donation. It has greatly improved our son's "happy meter," which in turn improves our family life and the village surrounding Jeffrey.
We are blessed to be part of such a wonderful organization. All the people we have ever encountered associated with UCP have been wonderful, helpful, caring people. We love YOU!
Jeffrey, Ron and Cheryl Hugie
You've seen the play - now you can own it on DVD!!
Six UCP moms gathered for ten weeks to share and write about their lives, families, experiences and especially their journeys with their children who have cerebral palsy.
Their writings have been turned into a theater production. "Fierce Love" is authentic, riveting, and inspiring. These mothers share their hopes, life truths, and admit their biggest fears in their messy and brilliantly beautiful lives.
Now you can own the full theater performance on DVD!!!
Fierce Love, in partnership with United Cerebral Palsy was an enormous success. Audiences filled Milagro and spoke highly of the journey the smart, funny writers took them on.
As a special event during United Cerebral Palsy’s Family Weekend, Well Arts is bringing back the sold out hit, Fierce Love, for two performances on Sunday, August 16th. UCP’s Family Picnic takes place at Harper’s Playground, Portland’s first ADA accessible playground, on Saturday, August 15th.
On Sunday, Well Arts will present a matinee (2:00) and evening (7:30) performance of Fierce Love, the extremely moving play written by six mothers of children with cerebral palsy.
Between the two performances there will be a meet and greet with the writers, cast, and production team; along with food, drink from local establishments and a silent auction with items from local businesses and hand-made by UCP members . All proceeds from ticket sales and the silent auction will go to benefit United Cerebral Palsy and Well Arts evenly.
Tickets for this special event are available now, and include the evening reception. General Admission is $30.00, $20.00 for UCP Members.
Performances at Milagro Theatre, 525 SE Stark, on Sunday, August 16, 2015 at 2pm and 7:30pm.
Six mothers gathered for ten weeks to share and write about their lives, families, experiences and especially their journeys with their children who have cerebral palsy.
Their writings have been turned into a theater production. "Fierce Love" is authentic riveting, and inspiring. These mothers share their hopes, life truths, and admit their biggest fears in their messy, broken, and brilliantly beautiful lives.
Directed by Erica Terpening-Romeo and Heath Hyun Houghton
Facilitated by Heath Hyun Houghton and Erica Terpening-Romeo
The 16th Family Conference on Cerebral Palsy and Developmental
Disabilities was a roaring success. Held October 24th and 25th
in Portland, nearly 150 parents, self-advocates, vendors, presenters,
and staff came together for two days of speakers, workshops, and
connections. The vendors were “generous with their time” and a
Our keynote speaker; Julie Keon shared “Ten Pearls of Wisdom
Gained in Ten Years” with the group. One mom wrote “it was a great
opening topic…allowed me to connect, feel accepted, and that I was
among friends who share my struggle.” Another said that Julie’s words
went “straight to my heart.”
In addition, there were 14 workshops on such topics as
Low & High Tech Communication; Adaptive Play/Recreation;
Custom Orthotics; K Plan; Treatments for CP; Sibling Support; and
the usuals: Parents Panel; Growing Up with CP.
Here are some remarks from Julie’s afternoon workshop on
“how to stay resilient for the long haul”: “we have to make self-care
a priority, without making it an added stress”; “it takes a metropolis
to raise a child with medical fragility”; “we take 28,000 breaths a day;
if shallow, our body thinks we’re in an emergency”. She really focused
on the importance of deep breathing.
The Family Support Conference is held bi-annually (every other year).
Plans are already underway for our October 2016 conference.
If you missed this year’s, you want to be sure to attend the next one.
This year we will be celebrating 10 years of the Walk, Roll 'n' Run! We are excitedly planning for this momentous day and hope you can join us!
It is always a wonderful day spent with family, friends and the community as we raise awareness and the funds needed for the Family Support Department here at UCP.
Register at www.walkrollnrun.org to sign up, form a team, join a team or support an individual! We have a big goal of $100,000 to meet for our 10th year and every bit helps!
We are always looking for wonderful sponsors, to help to make this fun and meaningful day in the community special for all. If you know of a business that would like to join our list of sponsors and help us reach our fundraising goal, have them view the sponsor packet by clicking here or email Kerry Pinney, Development Coordinater at for more information.
Watch the new video to see the fun had by all over the last 9 years and don’t be left out of the fun as we celebrate 10 years of the Walk, Roll ‘n’ Run!
Want To Find Out More?
This year we are asking for YOU to design the 2014 Walk, Roll 'n' Run t-shirt! See complete details for the t-shirt design contest by clicking on the pdf below. There is a $100 gift certificate in it for the winner along with the joy of seeing your design on hundreds of people around town!
Submissions Due - Friday, March 14th!
UCP’s Family Support Department provides all kinds of support to parents who are raising a child with cerebral palsy (and rare disabilities that mimic CP), such as information and referral, support groups, and overnight respite from caregiving.
But one of the most important things we do is help parents connect with other parents. One of the ways parents connect is through our “Let’s Connect” program, which UCP runs with funding assistance from the Developmental Disability Service offices in Clackamas and Multnomah counties.
Here’s how Let’s Connect works: throughout the year, parents can attend trainings on a variety of useful topics. Attendees will learn a lot, and get the chance to connect with other parents who are interested in the same topic.
If you missed the 2013 trainings, we have good news for you! In 2014, we will once again be hosting a full roster of trainings in Clackamas County. We are collecting suggestions for training topics from county service coordinators and parents. If you’d like to suggest topics for the trainings, please contact us by .
Along with the trainings, the 2014 Let’s Connect program will also feature several family outings, including the extremely popular roller skating day and a summer picnic. Stay tuned to learn more details!
Meal time a challenge?
UCP will be holding a workshop which will explore the nature of picky eating for children, teens, and adults who experience disabilities. The nationally known speaker, Joan Medlen, will share strategies and a tiny bit of science to reduce stress at mealtime. The training will be held November 7th from 6:30pm to 8:00pm in Clackamas. Learn more here.
This training is the last training of 2013’s Let’s Connect Series. Let’s Connect is a vibrant collaboration between UCP Family Support and the Clackamas and Multnomah Developmental Disability Service offices, and combines trainings, outings and the sharing of useful information.
Find out more about UCP's Family Support Department here.